My daughter has been following the Pulse Method. For three days she takes IV Rocephin (an antibiotic) at 2 gms every 12 hours and Tinidazole (alternative to Flagyl, to open the cysts and allow the antibiotics to kill it). The dose of Tinidazole that she takes is 500 mg orally twice a day, one to two hours before the Rocephin antibiotic. This protocol is specific for the Borrelia bacteria found in Deanna (Borrelia Recurrentis, according to IGenex). There are many different species and strains of Borrelia and you’ll need a treatment specific to the species or strain of Borrelia that you have. If you take Rocephin, you should also speak to your doctor about taking Actigall 300 mg orally 2 X a day to avoid the formation of Gall bladder stones that can occur with Rocephin. Also, speak to your doctor about taking Diflucan 100 mg orally every Monday and Thursday to avoid fungal infections that can occur when taking high doses of Rocephin or other antibiotics. What Deanna Takes To Replenish Good Bacteria. For seven days, to replenish good bacteria, Deanna takes PRESCRIPT-ASSIST, which combines probiotics and prebiotics to replenish the good bacteria. She takes Butyrate too, which is food for the good bacteria, to keep them alive, and NT Factor, which repairs cell membranes from cells that have been damaged due to the Borrelia. So for 3 days she kills the bad and some good bacteria but for 7 days she only restores the good bacteria. How Does The Deanna Protocol Plan Fit Into All Of This. Deanna continues the DP Plan to supply energy to the cells under stress and to suppress her muscle symptoms. She no longer takes the [Cowden Support Program] CSP which is antibacterial and anti-parasite herbs because, after a year, I believe all the other parasites or bacteria other than the Borrelia are now gone. How This Applies To You. Your specific treatment protocol should be determined by your Lyme literate doctor according to the specific type of Borrelia that are infecting your body. I would recommend using the Pulsed Method for the reasons mentioned above.
The link below is a Boston radio program in which Dr Alfred Miller is interviewed. We have been collaborating and sharing information for several years and he has been very helpful in treating Deanna. I urge all who have Lyme disease or neurodegenerative diseases such as ALS, PD, AD ,MS, fibromyalgia, Chronic fatigue syndrome, RA or Lupus and many others to listen to this presentation.
The Purpose of This Letter The purpose of this letter is to:
Introduce the idea that ALS and other neurological diseases (MS, Alzheimer's,Parkinson's, etc.) are likely linked to bacterial infections. (See evidence from Dr. McDonald & Dr. Miller.)
Change the direction of the current research on a number of serious debilitating diseases that are becoming more common. Unless the direction of the research is changed, many patients will be left hopeless and die horrible deaths.
There is anecdotal and laboratory evidence that ALS, MS, and perhaps some Alzheimer disease are caused by the borrelia bacteria.
Medical science has a difficult time detecting the borrelia bacteria. This has been documented by many people with ALS (pALS) initially testing negative for a borrelia infection to rule out Lyme disease, but then testing positive in late stages of their disease.
There is a host response to the borrelia bacteria which is a lowering of natural killer (NK) lymphocytes in response to the borrelia infection.
Who should be tested?
If an individual has a neurological deficit or cognitive impairment of unknown cause, testing for NK lymphocytes will indicate contact with the borrelia infection, and can be used to justify treatment for the borrelia infection. This approach is much more acceptable than watching and waiting while the individual continues a downhill spiral.
After many unanticipated delays the scientists at University of South Florida (USF) are moving forward with the experiment to determine the efficacy of the Deanna Protocol® Plan when combined with glutamic oxaloacetate transaminase (GOT). The experiment is being performed in steps using SOD1-G93A mice.
The next step is to collect the first of weekly biometric and behavioral data and separate the mice into experimental groups. The experiment includes four treatment groups: standard diet (SD); SD + Deanna Protocol® Plan (DP); SD +GOT + oxaloacetate (OX); SD + DP + GOT + OX.
Mice will be humanely euthanaized when disease progression, as determined by the USF veterinarians, is causing undue suffering. Tissues (muscles, brain and other organs) will be collected, processed and analyzed to see what effects the various treatments had. Once results are evaluated and available, an additional update will be shared on the website.
What were the delays?
Approval was needed from the IACUC for some changes to the “Pharmacokinetics of GOT” protocol. This took much longer than usual, since vets are very concerned with animal welfare and are quite particular about any change to an already-approved protocol.
Ability to purchase the drug (oxaloacetic acid) was hindered due to shortage and eventually exorbitant increases in price.
A system to measure the amount of OX in the mouse blood did not exist and it took considerable time to form cooperative partnerships and develop a successful strategy for reliable measurement.
Please continue reading for more details from the lab regarding the experiment. Results of the experiment will be shared in an additional blog post.
Responding to Dr. Bedlack’s Criticism of the Deanna Protocol® Plan The webinar hosted by Dr. Bedlack for ALS Untangled criticized the Deanna Protocol® Plan. One criticism states that documentation of the DP™ Plan is faulty because it only reported on those patients who did well and did not include many other patients and, therefore, the data was biased. He is absolutely correct. Regardless of the aforementioned bias, the fact that there are individuals who are improving and stabilizing for years (and some indefinitely) while following the DP™ Plan means that it delivers results better than those of any pharmaceutical ALS treatments on the market today. This is a fact that cannot be negated by lack of data on those who did not see improvements while on the DP™ Plan. Regarding the bias in the data collection, Bedlack failed to mention that it is impossible to gather unbiased data because large amounts of data are nearly impossible to collect, given the limited number of PALS in any one geographic area. Winning the Fight has attempted to remedy this problem and has succeeded somewhat, but we have a ways to go. We began asking PALS to periodically record their ALSFRS scores on our website and, as a result, roughly 2,000 PALS have registered on our personal database. Those who have reported their scores have reported that they have declined less than the average amount and some have not declined at all.
In our PLOS ONE peer reviewed research paper in another sample, we reported on 40 out of 41 patients. One patient passed away. The success rate in this group was 70% with ALSFRS scores lower than the average. What happened to the PALS that did not respond? We don’t know.
Methodology vs. Common Sense This is a situation where experts accept methodology over common sense, which is correct in most cases. However, in cases in which patients suffer from aggressive illnesses that will kill them in two to five years, common sense must reign supreme if it leads to a better outcome for patients. If the DP™ Plan yields better results than any other solution on the market, does it really make sense to say that nobody should use it because the methodology is imperfect? If we agree to this school of thought, what we’re really saying is that PALS should choose a definite and horrible death over an imperfect methodology that can improve their quality of life and extend their lives. Would you rather die a horrible death than accept imperfection?
Deanna Protocol® Plan vs. Pharmaceutical ALS Treatments Neuroscientists have been trying to find a treatment to keep ALS patients alive for over 100 years, and patients continue to die within two to five years of diagnosis. The medical research community has spent many billions of dollars in this endeavor and watched tens of thousands of patients die horrible deaths. What result has this yielded? The greatest success in the ALS research community so far is a chemical called Riluzole, which extends life for 2 months and can damage the liver. Contrast the above with an over-the-counter, natural, non-harmful, metabolic solution that laboratory studies have proven effective in mice and anecdotal evidence has proven effective in humans.
The ALS association and other organizations focused on ALS research do much to benefit the ALS population. They provide services, provide assisted technology, raise awareness, and more. Despite the good these organizations do, they do a disservice to patients by overlooking the DP™ Plan, a solution that many PALS say helps. Is it a Cure? No, but it is better than nothing...which is what the medical community currently offers.
We believe that the DP™ Plan can be improved with research, but funding is necessary to continue this research. Rather than continue to waste so much money on chemicals that have little basis for their benefit to PALS, why not divert some money for research to help current PALS. Why not contribute to helping preserve their ability to function, lead more comfortable lives, and live longer lives? Ask the PALS using the DP™ Plan. Most will support the idea.
AIRED: December 28, 2015– 11 am PST TITLE: “The Deanna Protocol®: Hope For ALS and other Neurological Conditions” SPECIAL GUEST: Dr. Vincent Tedone AUDIO REPLAY/DOWNLOAD: http://answersforthefamily.com/the-deanna-protocol-hope-for-als-and-other-neurological-conditions-dr-vincent-tedone/
Dr. T. and Deanna discuss the development of the protocol with reporter Gina Pitisci. When Dr. Vincent Tedone’s daughter was diagnosed with ALS in 2007, he told her she would beat the disease. Deanna Tedone Gage was an attorney, recently married and starting her life when she learned her diagnosis at age 30. "Without my father, I would not be sitting here talking to you today,” she said. “He not only provided a method to keep me alive, but he also gave fuel to my positive attitude." Doctors gave her little hope. But she and her father decided to create their own. That’s how the Deanna Protocol® was born.
"All traditional research currently in progress is based on finding a pharmaceutical drug to cure ALS. Meanwhile, metabolic researchers at Winning the Fight believe they have found an additional supplement that might provide a therapy that can stop the disease in its tracks."